Move to make Bajans more aware of condition
BARBADIANS will soon know more about myasthenia gravis as the Myasthenia Gravis Association of Barbados intensifies its education and public awareness initiative.
Rosalind Mascoll, president of the association, said her group wanted the word to become well known. She said the organisation was still in education mode as some of its members were still learning about the condition.
Myasthenia gravis is a condition that is characterised by weakness of certain muscles.
“A lot of people do not know about myasthenia gravis, and we will not be able to get assistance if they do not know about it and the needs”.
The medication and methods to better control the condition are also an important concern for the association.
Mascoll said they had been paying close attention to clinical trials taking place overseas to find out how they can better cope with and manage the illness for which there is no known cure as yet.
Mascoll said a new drug, intravenous immune globulin, had shown good results and was gaining some recognition because a lot of people have improved their condition with the treatment.
However, the association still wanted more studies to be done before recommending its use here. (LK)
What is Myasthenia Gravis?
The Myasthenia Gravis Foundation of America defines the illness as “grave muscular weakness”. It can affect all races and both genders at any age.
It is not thought to the directly inherited and it is not contagious.
Common symptoms can include a drooping eyelid, blurred or double vision, slurred speech, difficulty chewing and swallowing, weakness in the arms and legs, chronic muscle fatigue and difficulty breathing.